"As kingfishers catch fire, dragonflies draw flame; / [ . . . ] Each mortal thing does one thing and the same: / Deals out that being indoors each one dwells; / Selves -- goes itself; 'myself' it speaks and spells, / Crying 'What I do is me; for that I came'." --Gerard Manley Hopkins
Showing posts with label Alzheimer's. Show all posts
Showing posts with label Alzheimer's. Show all posts

06 August 2009

Ninety Years

Monday was my daddy's 90th birthday. I've been supremely blessed to have known him for nearly 57 of those years (my brother for 61); he and our mother have been married for 66.

He served in WWII in the Air Force; he managed a pecan orchard; he worked as the landscape architect and the building and grounds supervisor at a major university. He hunted quail and pheasant and deer (a prize-winning deer head is now in the Rockefeller mansion); he fished for trout and redfish and whatever other fish he could catch. He served faithfully in his church at every level, and participated in work trips to a sister church in Mexico, teaching them horticultural techniques and helping with building projects.

But most of all, he has loved his family. I never for one moment in my life doubted his love. At nearly 57, I am still the same daddy's girl that I was at 7, and if I could I would curl up in his lap again and laugh with him over the happenings of our days.

His body and mind are rebelling now. He lives in an assisted living home (and thank God for lovely people who love and honor the elderly), a difficult thing for both him and Mother, but necessary for the health and safety of them both. When I left after a week there last May, Mother went to see him and he said, "Maribeth was here?" But when I had arrived, he had known me immediately, and never wavered in knowing me during the entire week. His mind might trick him about when he saw me last, but it doesn't forget who I am when I'm there. And if it does in the future, if he looks at me and thinks I'm my mother or his sister or whoever -- I am confident that some part of him will still know me and love me, because nothing is stronger than that love.

Last year when I was able to visit for several weeks, he talked to me once or twice, when we were alone together, about his sense of failure -- he was of course upset over not being able to do the many things he has always done and being dependent on Mother and the rest of us, and was feeling useless because of it, but when I assured him that his lack of activity didn't change his value to us or his ability to love us, he teared up and said he "hadn't been as good as [he] should be." It startled me, but opened the way for us to talk about the love of Jesus in a way we rarely had before. He knew it, but the newly clear view of mortality was forcing him to think of it in more urgent ways.

Daddy has never been demonstrative about his faith, but I've never doubted its reality -- not because of his work in the church so much as because of that unwavering love for us. One of his few regular shows of faith was the mealtime prayer that he always spoke. It was a memorized prayer, which he would occasionally change a bit or add to in honor of special occasions, like a birthday or our visits after we'd grown and gone. At one time, in the hubris of a young belief, I scorned this -- but I have learned since then, thank God, that repetition needn't be mindlessness, that it can hold great value in so many ways. And last summer, as I first saw for myself the way his mind had begun to trick him, I prayed that he would never lose that prayer.

Mother called me last night (my late-sent birthday card had still not arrived; I'm a lousy daughter) and told me about the birthday dinner. My brother brought venison for the main meal, my aunt (Daddy's "baby" sister; she's only 81) brought cake; Mother brought flowers for the table. The staff set them up in a private spot. The meals of course are communal as a rule, and there is always someone who says grace -- so Daddy has had very few occasions to pray before a meal for over a year now. So when Mother said, "Let's say grace," she assumed she would need to do so -- but as she reached for his hand, she saw that he had already bowed his head, and he spoke his prayer, perfectly, without so much as a second's hesitation.

And she tells me that the last couple of weeks he's been doing something new: he sings "Jesus love me, this I know / for the Bible tells me so" -- and then says, in complete confidence, "And I know that's true."

Ninety years. I want him here for the rest of mine, and I fear the loss that will come sooner rather than later, but I will always think of him singing "Jesus loves me" as the inevitable approaches, and be thankful in seeing that, indeed, love can't be taken away.

01 June 2008

Love is . . .

“Love is what you go through with someone” – James Thurber

Unknown saints quietly work their magic in homes across the country, often exhausted and sad and frustrated, but choosing to love and care for those whose lives have been bound up with theirs, despite often being misunderstood, lashed out at, and finally not recognized at all. They are the loving and tireless caretakers of spouses, siblings, or parents with dementia.

I hate that word, “dementia.” It has such strong connotations of insanity, and yet it is not really insanity as we think of it in popular culture. True, the person with dementia is “out of his mind” to the eye of the observer; but the causes are solely, purely physical: there is as yet no hope of recovery from use of medication, and – because there is no psychological element – there can never be hope of help from psychiatric treatment. I would just say “Alzheimer’s,” which doesn’t have those connotations, but all dementia is not Alzheimer’s, as my father’s is not; different causes exist, and the progression is not exactly the same, and it seems to matter to be precise.


“Vascular Cognitive Impairment” is his condition: dementia caused by a long series of “mini-strokes” – TIAs – that in themselves don’t leave the kind of lasting damage of a major stroke (the typical loss of muscle use, for example, on one side of the body), but over time damage the brain so that dementia occurs. (They are also likely precursors to a major stroke, of which my grandmother, Daddy’s mother, died when she was 90; Daddy will be 89 this summer.)

Dementia begins slowly – perhaps a struggle with numbers or more forgetfulness than comes with normal aging. But its progression is inexorable, and it is surely one of the most painful processes to watch a loved one endure. The puzzled look of a spouse who doesn’t seem to know you; questions like “Do we have any children?”; remarks about “my first wife” when you have been married for 63 years . . . The anger and frustration when you must take away the car keys or insist on a certain diet or give reminders to eat slowly or use the bathroom . . . The fear and sadness and shame in his or her eyes . . . The knowledge that this man or woman you love will never be better, and only worse is to come . . .

And yet these saints who suffer in seeing their loved ones suffer continue to love, to remember what was and to assure dignity despite the loss of return. They learn to speak patiently, to bring beauty, to give respect, to elicit laughter as often as possible. They know that love is not what they receive, but what they give, and they give without reservation. When they are weary and longing for a good night’s sleep, they rise without complaint to help a spouse to the bathroom; when they are berated, they give a hug and set aside the unintended hurt; they never fail to say “I love you” again and again, to offer the reassurance of speech and touch so desperately needed by the one who is losing his or her understanding and grasp of reality.

I stand humbled before these quiet, unknown saints and pray that I may learn from them the grace of giving.

Followers